Juliana Wetmore and her family are exceptional. A rare genetic condition made their life difficult. Juliana was born in 2003 and has a severe facial defect. She has had plenty of operations, had everything from simple procedures, like inserting a Port-A-Cath, to major intracranial operations. But now she feels well and started school this autumn. Sometimes you must read a story like this one to realize that how far we are from curing, treating genetic conditions, diseases.